Friday, February 22, 2013

2/22/13

what a difference a day makes - ok, it was only a night, a very short night.  We got home about 9:30 last night after almost 12 continuous hours of treatment for John.  We packed up for a little weekend get-a-way to visit with the Pittsburgh family and to see off our eldest son who will be doing a month of residency in Hawaii; Rebecca and Annabel will be able to join him for a couple of weeks.

This morning we headed back to Phila for John's last photopheresis treatment this week.  One of the reasons he had to receive blood yesterday was that his hematocrit was too low for good functioning of the pheresis machine (I'm sure there's a technical term... pheresis-er??)  John's temp was 101.9 which may be a reaction to all of the blood products he received yesterday; or, it may be an infection.  So, photopheresis was abruptly discontinued and John is in the clinic now receiving two IV antibiotics.  When that is done, we have to walk across the street so he can be admitted to the hospital until the temperature comes down.

John has a picc line which is a potential source of infection.  I'm sure that will be checked out.  He also has a cap that came loose yesterday - another possible cause of the infection?  He had an appointment scheduled with his dentist for Monday but it is unlikely he will be home by then.  Still, maybe there is a chance... his temp here in the clinic is 99.4; maybe they just had a bum thermometer upstairs.  We'll keep you updated.

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