Today is Day 90 from John's stem cell transplant; it has officially been 3 months. To celebrate, John had a bone marrow biopsy; not exactly a good time but a procedure that will yield important information about how much of John's immune system is left and how much of the donors' immune systems is engrafted. It also offers a peek into the health of the cells. John gets one every 3 months for the first year.
Another milestone - today marks one week that John has been home. We are adjusting to our schedule of photopheresis treatments and home procedures; think we have it figured out now. The hvgd rash has returned so the steroid dose will be increased a little; hopefully that and the photopheresis will knock the rash down before it gets a chance to really establish itself. There is also a new med given bi-weekly that should help keep the cmv numbers below 100. That first treatment will be next Thursday; right now we don't have results more current than the numbers at discharge which were 118. The blood results have all improved - not to normal but better than they were; this is most likely a result of discontinuing the phoscarnate for treating the cmv.
Thank you to all of our helpers (medical, snack and meal providers, card writers, drivers, prayer-ers, and visitors); words don't adequately express our gratitude but they are all we have at the moment. Thank you all.
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